Our daughter was born with a chromosomal defect called Ring 18. During her first year, she was very hypotonic (low tone), and had poor eyesight, hearing, and sense of touch.
It was the day that time stood still. When our precious little girl was born, one of the happiest days of our lives rapidly descended into feelings of deep grief, despair, and trepidation for the future.
When our daughter was 20 days old, hospital doctors diagnosed her with monosomy 18q [Chromosome 18 Ring], a very rare chromosomal disorder.
Doctors diagnosed him with dyslexia. When he told a story, he often started in the middle. Even when he saw an accident happen, he told the story in the wrong sequence.
No one can ever imagine the experience of having a child with epilepsy. Our daughter was a beautiful newborn when she had her first seizure. It was the scariest thing my husband and I had ever seen.
Some days he would just bang his head on the floor, or pick at the skin on his arms until it bled. The faintest of noises other than his own hurt his ears.
At two years of age, one of our searches led us to Dr. Barry Gillespie. He discussed the ramifications of our son’s zero-second brain cycle and his severe full-body fascial strain patterns.
At three months, her parents abandoned her at a local hospital. At five months an orphanage took her for more than two years. Her institutional life was characterized by neglect, malnutrition, lack of nurturing, and deprivation of everything that a human being needs for well-being.
When you palpate the cranium of a brain-injured child, you may not feel any motion. Since these children can be extremely restricted, it is not surprising they have physical difficulties in life.